I’m back…

I know it’s been a while… what can I say? I’ve been a little distracted by my book. Today’s post may seem a little erratic and all over the place. I haven’t been here in so long that I will try to write this on the spot and publish it right away rather than go through...

Authenticity

I have been re-reading my posts, and I wonder if I am being truly authentic. I know I am truthful. I am proud to be disabled, annoyed by the views people have of people with disabilities, and have shared some of the frustration that happens with Friedreich’s ataxia....

I’m proud

Recently, I was looking through old pictures trying to find some image to potentially integrate into the cover of my upcoming memoir, My Unexpected Life: Finding Balance Beyond My Diagnosis. I contemplated whether or not to use a photo where I was walking solo, with...

COVID, part II

continued at the ER… Ten minutes later, I sat in the x-ray room. The middle-aged, male technician’s demeanor was cautious—he did his best to keep his distance. “Can you move your armrests up?” He said. I did so. “Ok. Now lean forward, put your arms up,  and can...

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