Risky Business

Not only do I have Friedreich’s Ataxia, but I also have Multiple Sclerosis (MS). The medication I take for the MS compromises my immunity. According to my neurologist, the drug has not been linked to higher instances of  Covid-19. Maybe that knowledge, the fact I have...

Happy Rare Disease Day

Having Friedreich’s ataxia makes me unique, and I am one of 20,000 people in the world living with FA. Despite the extraordinary context of my life, I dare to call it ordinary. I am crabby in the morning until my first cup of coffee; I shower, get dressed, take my...

What is FA?

“Fred’s tax, what?” The nurse stood over me as I sat in the exam room. I giggled and rolled my eyes. Time to educate another medical professional. I drew up my breath to be sure my voice was clear. “Friedreich’s Ataxia.” The mouse-like woman’s face was blank like she...

Welcome!

Welcome to my website and my first blog post! First let me tell you a bit about me I grew up in the an ‘80s—I couldn’t get enough of Molly Ringwald or Duran Duran. I’m originally from Wisconsin and love cheese and the Packers. When I was 17, I was diagnosed with a...

Don't miss out! Sign up today to receive my latest posts and book updates.

Don't miss out! Sign up today to receive Jeniffer's latest posts, book updates, and as a bonus, you will get a link to her Spotify playlist (includes all the music referenced in the book).

You have Successfully Subscribed!

Skip to content