Now and then

When I became a Friedreich’s Ataxia Research Alliance (FARA), ambassador in 2020, I was in the middle of writing my memoir My Unexpected Life: Finding Balance Beyond My Diagnosis. Although I knew my book about living with Friedreich’s ataxia (FA), would one day be...

What makes me uncomfortable…

I don’t always find talking about myself comfortable. That’s a little weird coming from a person who wrote a memoir that included some embarrassing moments. My Unexpected Life: Finding Balance Beyond My Diagnosis has been out in the world for three months...

Triggers and treats

Okay, this post is about three days too late for that title. . but it works. I returned from my 18-day trip to Philadelphia, Minnesota, and Wisconsin, exhausted. But also proud. Though the main purpose of the trip was to sell My Unexpected Life, which I did, I also...

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