Blog (13 wpm)
Turning thoughts on Living with FA into print 13 words per minute
Accessible food?
"It all makes sense now," I interrupted the blonde nutritionist across from me at the gym I went to. She had been explaining how eating more salad would help me lose weight since taking a traditional exercise class wasn't going to work for me. I stared into the cloud of particles of dust in the air that were highlighted by the beam of light in her office. "What? Am I not explaining…?" She looked...
What is FA?
“Fred’s tax, what?” The nurse stood over me as I sat in the exam room. I giggled and rolled my eyes. Time to educate another medical professional. I drew up my breath to be sure my voice was clear. “Friedreich’s Ataxia.” The mouse-like woman’s face was blank like she still didn’t understand. “It’s rare.” I wanted, (but not really), to make her feel better for not knowing about the disease I had...
Welcome!
Welcome to my website and my first blog post! First let me tell you a bit about me I grew up in the an ‘80s—I couldn’t get enough of Molly Ringwald or Duran Duran. I’m originally from Wisconsin and love cheese and the Packers. When I was 17, I was diagnosed with a genetic, progressive disability called Friedreich’s Ataxia, (FA). What is FA? It took me a while to understand and I am still...
